she is just 18 and found this out, it basically means she is eventually going to go blind, it has progressed already into tunnel vision. I would just like to know if anyone has any advice for me as her sister as to what to expect or anyone who knows first hand of the condition.i also found out that it is more common in girls, is this true as i have 3 daughters and would hate to think they could get this

Retinitis pigmentosa is an eye disease in which there is damage to the retina. The damage gets worse (progresses) over time. People with this condition have problems with night vision and peripheral vision. Retinitis pigmentosa commonly runs in families. The disorder can be caused by a number of genetic defects.The cells controlling night vision (rods) are most likely to be affected. However, in some cases, retinal cone cells are damaged the most. The main sign of the disease is the presence of dark pigmented spots in the retina.As the disease gets worse, peripheral vision is gradually lost. The condition may eventually lead to blindness, but usually not complete blindness. Signs and symptoms often first appear in childhood, but severe visual problems do not usually develop until early adulthood.The main risk factor is a family history of retinitis pigmentosa. It is an uncommon condition affecting about 1 in 4,000 people in the United States.There is no effective treatment for this condition. The use of sunglasses to protect the retina from ultraviolet light may help preserve vision.Controversial studies have suggested that treatment with antioxidant agents (such as vitamin A palmitate) may delay the disease from getting worse.Referral to a low vision specialist is very helpful. Patients should make regular visits to an eye care specialist to screen for the development of cataracts or retinal swelling -- both of which can be treated.The disorder will continue to progress, although slowly. Complete blindness is uncommon.