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Old 12-12-2007, 08:29 PM
gr8disaster gr8disaster is offline
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Default retinitis pigmentosa Chinese Treatment? (Despair! )?

Hello,
My Eyes have recently been diagnosed with retinitis pigmentosa, Darkness ..
I read a few topis about chinese herbs and how they can improve if not treat this disease..
I'm helplessly looking for doctors to even try and treat this eye disease because my job depends on it ,if not my WHOLE LIFE!
I'm in despair and I'm in a profound need for a chinese doctor who can TRY to treat my eyes with Chinese Herbs..
I need doctots whom i can contact and set an oppoitment , even in China itself.
Thank You...


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Old 12-12-2007, 08:39 PM
deYoung deYoung is offline
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Retinitis pigmentosa has not been shown to respond to herbal treatment.
What does your doctor say is the best treatment for you?
As yet, there is no known cure for Retinitis Pigmentosa. However, intensive research is currently under way to discover the cause, prevention, and treatment of RP. At this time, retinitis pigmentosa researchers have identified a first step in managing Retinitis Pigmentosa. While not a cure, certain doses of vitamin A have been found to slightly slow the progression of retinitis pigmentosa in some individuals.
It is important to remember that because Retinitis Pigmentosa is an inherited disorder, it commonly affects other members of a family. If someone in your family is diagnosed with a retinal degeneration, it is strongly advised that all members of the family contact an eye care professional.
Yes, you're right. This will affect your whole life. But you need to start finding out how you can change with this - How can you alter your career so that you can continue as your sight decreases - or what career can you train for that will allow you to continue to work as your sight decreases?
I would get on the net and find a support group. Find one in your area that you can go to, if possible. You'll find that once you are armed with information and support, you'll be able to cope.
I have faith in you.
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Old 12-12-2007, 08:48 PM
Jenn Jenn is offline
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I don't know where you live so it is hard to recommend a doctor to you. Out of curiosity, why must it be a chinese herbal remedy? I think it may be hard to find someone with enough knowledge about your problem to know to treat it with herbs. Something as serious as your vision may require prescription meds. I think you should go to an eye doctor first, then continue your search for an herbal practitioner. The only thing that is proven to help your condition (but not cure it) is a daily intake of vitamin A palmitate. You need to talk to a doctor before using it. In the future it may be possible to have surgery, but as of right now, that is the only treatment I know of. It won't cure you, but it can hold off blindness for up to ten years.
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Old 12-18-2007, 11:15 PM
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